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The New Normal

Lou Weinberg

The New Normal

It was about seven years ago that I first noticed something was wrong. It started almost imperceptibly. I had trouble getting keys out of my pockets as well as inserting them into the lock; there were ripples on the surface when I drank from a glass; I had difficulty maneuvering my computer mouse, typing and buttoning my shirt. My fine motors skills were malfunctioning and I didn't know why. I was scared. So I did what most idiots would do. I ignored it.

Then one day – about two years after my symptoms first appeared - I was randomly grouped with a neurologist at a golf outing. As we walked down the fairway he looked at me and said “Do you know that your right arm doesn’t swing? You should get that checked out.” I knew right then what I had feared for some time - I had Parkinson’s Disease (PD)

A week later I was formally diagnosed. It came as no surprise. I had all the classic symptoms and a family history. I thought my life was over. I wallowed in self pity. I cried. Little did I know that in a powerful and positive way, it was also the beginning of a new chapter in my life. This was the beginning my new normal. My PD journey had officially begun.

Fast forward seven years and I haven't slowed down one bit. I'm still skiing, golfing, hiking and biking. I’m working less and traveling more. I have a newfound appreciation for life’s small pleasures; time spent with my kids, family and friends; a delicious meal; a great cup of coffee; a glass of wine; trees; sunsets; and lightning storms. And yes, every once in a while I am scared shitless of what my future holds in store.

It was shortly after my diagnosis that I began my relationship with The Michael J. Fox Foundation for Parkinson’s Research (MJFF). I attended their seminars and webinars; read everything they published; found a wonderful doctor through them; and most importantly, I joined a community of others living with PD who I have shared experiences, hopes, dreams and tears. MJFF has been my go-to source for information, guidance and hope. Since its inception in 2000, it has raised over $800,000,000 to fund cutting edge research that has improved the lives of millions of people living with PD. But there is still much work to be done. And that takes money - lots of money!

Now let's get down to business. There are many exciting, promising new developments in the treatment of PD, some of which will eventually benefit many of the approximately 10 million people living with it ......including me. And it seems only fair that if I want the benefits of advances in the treatment of PD, I have a responsibility to do my part. That is why this August 3rd - on my 60th birthday - my kids Josh, Steph, Daniel and I - and some of our friends - will hike to the summit Mount Washington to raise money for MJFF. At 6288 feet it is the tallest peak in the Northeast. The trail we are hiking will take about 3.5 hours and ascend 3600 vertical feet over the course of 4.6 grueling miles. I can't think of a better way to celebrate my 60th birthday while at the same time raising money for MJFF. It will also serve as a poignant reminder that I still have a lot of active and fulfilling years ahead.



Here’s what I am asking you to do;

1- Follow this link to my donation page and make a donation


You can also visit my Team page at


2 - PLEASE forward the link to my donation page by email, text and social media to friends and family and let them know that you have a friend with PD. Please ask them to read my message.

3 - Help me raise money by joining Team Sweetlou. Follow the link to the team page above to join. It's fast and easy.

and finally..................

4 - COME CLIMB WITH ME ON SATURDAY AUGUST 3rd. If you are interested, please contact me at lweinberg@madisontitle.com. It will be physically and aerobically challenging but even more exhilarating.


Thank you for taking the time to read this.

Lou Weinberg


raised of $100,000 goal


Recent Donations

1. ?Anonymous
2. ?Anonymous
3. ECElena Cascone
4. SCSteven Charno
5. PFPamela Flash
We would even jump off a cliff for you!
6. JSJed Siegel
Happy birthday Lou .....Amazing way to celebrate your 60th birthday!! Enjoy the hike and thank you for sharing your story with us. Kick butt!! Best always Jane Siegel

Team Sweetlou


Upcoming Events

Mt Washington Climb 8/3/2019 9:00:00 AM Mt Washington
Sargent's Purchase NH 03846